Resources

Resources for Cancer Patients & Caregivers

For Young Adults 

  • The I’m Too Young For This! Cancer Foundation is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services
  • Planet Cancer is a gathering place for young adults, which includes cancer comics, advice, cancertainment, news, current research, and forums
  • The Ulman Cancer Fund for Young Adults is a leading voice in the young adult cancer movement, that works at a grassroots level to support, educate, connect and empower young adults with cancer
  • Young Survival Coalition is a non-profit organization oriented to support and educate young women with breast cancer

Fertility:

  • Fertile Hope is a national LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility
  • MyOncofertility.org is an organization dedicated to providing reproductive information, support, and hope to cancer patients and survivors at risk for infertility.

Cancer Hats and Scarves:

  • Fat Thumb Chick makes t-shirt beanies cut and created with a special design that are fun and comfortable. In honor of her mother and a friend, she has made and given away more than 1,000 hats
  • Head Huggers knits hats for chemo patients and sends them out for free.
  • Heavenly Hats is an all volunteer organization which provides hats free of charge to cancer patients
  • Good Wishes is a partnership that sends beautiful L. Erickson scarves to anyone losing their hair as a result of illness or treatment 

Wigs and Makeup:

  • Look Good … Feel Better is a program of the American Cancer Society that helps women in treatment to choose a wig, scarf, or hat and to apply makeup that will make the most of any cancer-related changes in appearance. Every participant goes home with a goody bag of makeup. Sessions are free at most American hospitals with an oncology unit

Help With Household Chores: 

  • Cleaning for a Reason is a professional maid service that cleans the homes of cancer patients for free
  • Cleaning for Cancer is a national non-profit organization dedicated to providing free residential cleaning services to cancer patients undergoing treatment

Food:

  • Food and Friends provides meals, groceries and nutrition counseling to people living with life-challenging illnesses such as AIDS and cancer
  •  Care Calendar is an organizational tool that makes it easier for your friends and family to help out with meals or rides to appointments.  Once the calendar is set up, individuals can log on to sign up for bringing meals, etc. without having the burden on a single point of contact!  And it’s FREE!

Medical Bills and Prescriptions:

  • Cancer Care Assist provides transportation to and from cancer treatment, as well as home care and child care
  • The National Cancer Institute offers a comprehensive listing of government agencies and organizations designed to provide assistance for patients and families.
  • The First Mile Foundation provides financial support to families and individuals to alleviate the added everyday stresses associated with cancer
  • NeedyMeds, Inc provides links to pharmaceutical companies and other organizations that have patient assistance programs
  • Patient Access Network Foundation assists insured patients who cannot afford the out-of-pocket expenses associated with their treatment
  • Patient Advocate Foundation provides professional case management services to Americans with chronic, life threatening and debilitation illnesses. They will searve as active liaisons between the patient and their insurer, employer and/or creditors
  • Together Rx Access offers a free prescription savings card for eligible U.S. and Puerto Rico residents who have no prescription drug coverage, are not eligible for Medicare, and meet certain income guidelines
  • Social Security Disability payments are also an option for patients with life expectancies of 2 years or less, or with certain types of very agressive cancer, if the patient cannot work 

Air Transportation:

  • Air Care Alliance is a trade organization with a comprehensive online listing of organizations that provide patient air transportation for free to ambulatory and medically stable people to access care.
  • The National Patient Travel Center provides information about charitable, long-distance medical air transportation and provides referrrals to all appropriate sources of help available.

General:


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3 Responses to “Resources”

  1. Janie Starr July 15, 2012 at 11:15 pm #

    check out Bone Marrow Boogie ~ the dance of a lifetime
    by Janie Starr – acute lymphoma survivor/thriver

  2. Rajiv Kashyap Biography July 17, 2012 at 7:24 am #

    You have done good job by posting such an interesting information about the cancer. This is one of the most appreciative post, so far…!!!

  3. dallaslegacy August 1, 2012 at 9:43 am #

    Thank You, Suleika, for your beautiful articles and wonderful resources. My father was diagnosed with MDS at the age of 86 when he was still an active physical and intellectual person. He would have loved your website !

    He was given 6 months to live. But, he had a strong faith and a willingness to adjust his life-style based on research that he did to strengthen his body with food, exercise and perseverance. Through his research on MDS, he located a wonderful physician who was conducting clinical trials at U Mass Medical Center Worchester, He actually traveled from Illinois to Massachusetts to meet with her and she confirmed his hunches that his body could not tolerate the aggressive doses of chemo his doctor had prescribed. I will find her name and location (I think NYC at this time) and send it to you to add to your Resources.

    My Dad lived a fairly high quality of life despite his chemo therapy and being neutropenic for 3.5 years with his adjusted life style. He enjoyed researched on his laptop and reading as well as visiting with his family !

    I so glad that I have found you and your articles and site and your use of music and writing to improve the quality of your life during stressful times, so that I can share them with others.through a nonprofit society that I was a founding member of 24 years ago:

    The Society for the Arts in Healthcare (thesah.org)which is an international organization that promotes the use of all forms of the arts (art collections, music, dance, poetry, theatre, humanities, humor, writing etc) to reduce stress and pain from all forms of illnesses for patients, family members and caregivers.and to increase enjoyment by engaging in a variety of art experiences. We now have over 1,700 members world-wide and have Networks in countries such as Canada, Australia, England, Ireland, Japan etc.

    Our annual international conference will be held in Florida in 2013. I will send you information about this conference which brings over 400 people together to network and learn about the benefits of using the arts for healthcare and wellbeing! It is a joyful, meaningful conference because of the passion of those who attend and participate. I hope that this Society can be added to your list of Resources !

    I would also welcome the opportunity to talk with you about the Society and the wonderful Resources we now have online including a comprehensive bibliography that is maintained at the University of Florida.as well as my own work in this field over the last 28 years, establishing and implementing master plans for the arts for major medical centers through my company, Wilkins Art Associates, Inc. http://www.wilkinsart.com.

    Sincerely, .

    Pam Wilkins

    I can be beached

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