Archive | February, 2012

10 Ways to Help a Friend With Cancer

21 Feb

By SULEIKA JAOUAD  & SEAMUS MCKIERNAN

If it takes a village to raise a child, you might say it also takes one to care for the sick. Cancer is at once personal and communal. Disease lives in the sufferer’s body but the experience of illness is shared, often intimately, by our loved ones. And yet, caring for the sick can feel like writing a travelogue about a country you’ve never visited. You can’t know where you haven’t been.

“What can I do to help?”

This is the sincere, often reflexive, response people have when they find out I have cancer. When I was diagnosed with leukemia last May at the age of 22, my boyfriend, Seamus, sprung into action as my CCO: chief care-giving officer, after my parents. As the news of my diagnosis spread, my friends, acquaintances — and even some strangers — formed a loving support network. It was a comforting reminder of how selfless people can be.

But while most of my friends and family would help me in a heartbeat, knowing how to help can be a daunting, even paralyzing, challenge. Over the past eight months, through seven hospitalizations and six rounds of chemotherapy, Seamus and I have sustained a running dialogue about what it means to be a caregiver and a care recipient; what it means to be in love with one another while my body’s at war with itself.

This guide to helping a friend with cancer is built from parts of our many conversations on the subject of care giving.

    1. Say “I don’t know what to say” — A cancer diagnosis can paralyze the lines of communication between friends. Some people freeze up and don’t say anything at all, while others dwell on finding the “perfect” words. If you’re at a loss for words, say so. If you have a lot to say but don’t know where to start, say that, too. Honesty rules. I’ve never felt offended by someone who doesn’t know what to say, but I’ve felt hurt by those who don’t call or write at all. Don’t let the perfect be the enemy of the good.
    2. Be an equal opportunity listener — Cancer is a gloomy subject — there’s no pretending otherwise. While your instinct can be to immediately steer the conversation towards the cheerful, it’s vital for a cancer patient to feel comfortable venting feelings of fear, sadness, anger, loss, and isolation. One of the most important things you can do as a friend is to make it clear that you are willing to listen to both the good and the bad.
    3. Assess the specifics — Cancer patients are often too tired or too polite to respond to the broad question of “How can I help?” Take the lead and ask specific questions. Without being pushy, you’ll find areas where you can step in: Who is going to look after them during the day? Can they prepare their own meals? What about transportation? Are there other people close to the person with cancer who also need support?
    4. Do what you do best — Do what comes from the heart and follow through. Remember that the patient doesn’t expect you to compose a song if you don’t play an instrument. Lending a hand is easier when you do what’s in your wheelhouse. If you love to cook, drop off a homemade dish; if you’re an artist, make something to hang on the hospital room wall; if you’re an organizer, offer to gather research or to take notes during medical appointments.
    5. Take care of yourself — You hear it a lot: caregivers must take good care of themselves, too. No matter how upset or stressed out you are about your friend’s illness, it is critical to be selfish about your own health. Nutrition is important, especially because “comfort foods” beckon in times of stress. Regular exercise, even walking, is crucial for the body as well as the mind: some of the best thinking happens when your body is in motion. Perhaps most important of all is getting enough sleep. Love does, in fact, have boundaries. You must take care of yourself to be the best ally to your friend.
    6. “No need to write me back.” Since my diagnosis, I’ve been showered with the warmth of letters, emails and cards of support. These messages, filled with love and positive energy, are my daily reminders that I’m not alone in this struggle. But finding the energy to write back can feel like an herculean task. Dissolve any potential stress for the patient by reminding him or her that there’s no need to respond or write a thank-you note.
    7. Distraction is a godsend — While you should be careful joking about cancer (everybody’s sensitivity differs), some juicy gossip, a funny joke, or a good movie can go a long way in lifting someone’s spirits. Humor may feel out of place next to IV bags and bedpans, but it can be an essential counterweight to the gravity and absurdity of cancer. Don’t feel like you can’t be the bearer of good news. Bring magazines, music, stories and sunshine.
    8. Get involved in the cause — As someone who will be receiving a bone marrow transplant this spring, I am deeply moved by my friends who have signed up to become bone marrow donors or taken time to learn about my disease. Sign up to be a bone marrow donor, give blood, organize a fundraiser, or donate a sum (however small) to cancer research or an organization of your choice. It’s a gesture acknowledging that cancer affects communities of strangers as well as the people you know.
    9. “It’s time for me to go” — Long visits don’t necessarily mean better ones. Visits needn’t be rushed, but keep in mind that the sick person doesn’t have the same energy level as you do. Be attentive to signs that the patient needs to rest.
    10. I love you If there’s ever a time to tell a friend how much you care about them, this is it.

 Follow @suleikajaouad on Twitter and on her Facebook Page.

Seamus McKiernan is an associate blog editor at The Huffington Post.

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Positivity At All Costs Has A Cost

18 Feb

By SULEIKA JAOUAD

OK, Cancer is a gloomy subject — there’s no pretending it’s not. But often, our instinct is to over-emphasize the proverbial “silver lining.” Positive thinking at its best is an expression of hope in hard times. And while positivity itself is not a bad thing — it’s certainly more enjoyable than fixating on the negative — it can be problematic if it distorts the reality of what someone’s going through.

Americans like to think of themselves as “positive” people. Our culture is steeped in positive thinking — from self-help books to Harvard courses to the ubiquitous mention of the American Dream. After all, there is no dislike button on Facebook. But for a cancer patient, being bombarded with wild optimism for its own sake can sometimes achieve the opposite of its intended effect.

When I was first diagnosed, my close friends and family tried to put on a brave face, but instead of making me feel better, it sometimes made me feel more alone: was I the only person who felt scared, confused, and angry? I had cancer — why did everyone insist upon avoiding the topic?

Barbara Ehrenreich explores the negative effects of positive thinking in her recent book Bright-Sided. “We need to brace ourselves for a struggle against terrifying obstacles,” she writes, “both of our own making and imposed by the natural world. And the first step is to recover from the mass delusion that is positive thinking.” Ehrenreich isn’t against lightness or laughter, but instead, she urges us to consider how positivity and denial can go hand in hand.

While our instinct can be to immediately steer conversations with cancer patients towards the cheerful, it’s critical for someone who is sick to feel comfortable venting feelings of fear, sadness, anger, loss, and isolation. Being honest about how a life-threatening illness can make you feel — both as a caregiver and the one being cared for — helps get rid of the elephant in the room by acknowledging its presence. One of the most important things you can do for a friend with cancer is to be an equal opportunity listener. Make it clear that you are willing to listen to both the good and the bad.

Follow @suleikajaouad on Twitter and on her Facebook Page.

Precious Cargo

9 Feb

By SULEIKA JAOUAD 

I’m driving to my destination — I have to get there on time — but something is wrong under the hood. The engine’s clacking. At any moment, I’m worried it’ll sputter out, run out of gas, blow a gasket. I’m driving along, wearily, like a trucker on ice.

This is the metaphor that came to mind last week when I was racing to finish an important project as my body started to falter.

Here’s what happened.

February 1st began on a high note: My dream of writing for a major newspaper publication came true (more details to follow soon)! The editor gave me a deadline of Monday morning. For the first time since my diagnosis last May, I had a project. A responsibility. For the first time in more than 8 months, maybe cancer wouldn’t be my sole job.

Just one day later, I woke up with a feeling I know only too well: deep-in-the-bone exhaustion and achy limbs accompanied by mouth sores so painful that talking or taking a sip of water makes me want to cry. The worry starts to set in. But usually no ones says anything yet.

By 10 p.m. that night I was having uncontrollable chills. My mother piled blankets onto me but nothing could stop my teeth from chattering. I was cold from the inside, not outside. She checked my temperature: 99 degrees Fahrenheit. Twenty minutes later it was up to 100 degrees. When it climbed up to 102.5 I knew the dreaded H-bomb was about to drop. “Hospital, now,” my mom said.

Getting read for an emergency hospitalization is similar to going on a very chaotic, last-minute family vacation. My parents scramble to make sure they have a place to stay, we throw our clothing and toiletries into our carry-on luggage and then pile into the minivan for a four hour drive to New York City. By the time we arrived, it was almost 3 a.m. The ground floor of the hospital was completely deserted with the exception of a few patrolling security guards. And I was furious.

I hated my body for failing me now. Hadn’t it put me through enough? The timing seemed beyond unfair. I had two days to write my piece and, up in my hospital room, I could barely keep my eyes open from all the pain medication I was on. I went to bed feeling angry — angry at the white walls of my room, angry at the hospital food, and angry at the nurse who couldn’t find a good vein in my arm for the IV and kept poking me with needles.

My boyfriend woke me up the next morning and said: “You are going to get this piece done, no matter what we have to do.” I didn’t believe him. But he wasn’t kidding around and within half an hour we had begun the slow, tedious process of brainstorming and drafting an outline. I wasn’t the most pleasant collaborator — more times than I can count, I got tired, frustrated, broke into tears, and then had to take a long nap to recover from my outburst. But somehow, we did it. Needless to say I couldn’t have done it without him, but I got the piece done.

Comparing our bodies to vessels — like cars — that carry us through our lives, seems apt up to a point but it only goes so far. In the car metaphor, you can leave your broken vehicle by the road, hitchhike, or buy a new one. But in reality, we only have one “car.” While some people believe the mind can overcome the body, for the majority of us, especially for those of us who are ill, when the body is in crisis, the mind is too. Physical illness infects the mind: when your body ails, your mind, your thoughts, your plans, your identity is changed.

So, what can you do when your mind wants to do one thing and your body is saying another?

These three golden rules are what got me through the weekend: respect your body’s limitations (when you feel too tired to keep going, take a nap), compromise (one hour of work, one hour of rest), and when you need to, ask for help (thank you, Séamus).

*Footnote:  I have no idea what as gasket actually is, though I know of it. I can’t drive — I don’t even have a permit– but I still have my poetic license!

 Follow @suleikajaouad on Twitter and on her Facebook Page.

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